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Dearest *****... Sounds awful X:-( But the immune system attacking itself? What does THAT say to you? About You? That's where i would start (If you haven't already)... With pain control: when you REALLY need it,it is NOT a sin i have learned, as it/the drugs will give you the ~space~ to think (ie) Take your mind off the physical for a bit... Rem God made Doc's too and i have also learned not to see them as the bad guys in the opposite corner to me all the time...Lesson number one for me has been... Put Yourself FIRST!
REALLY put Yourself first... i have told my family i am on a ~Healing Holiday~ which basically means to them that they are sharing the duties with me as i take a step back from my life... It took a little while, but they (and me) after a few dashes to hospital, finally got it! (Remember they are a part of the Journey too)...
So my second thing would be, donot worry about the 'time' it is taking to find the right Doc for you, as it is 'The Universe's' time~table you need to follow... Remember you are NOT alone and when you 'send out' for help then relax with the understanding that you have been heard and help is on the way... i personally ask for 'signs' along the way... (This one took me a little while and is especially hard when you are in pain... So this is why pain relief is important as it will help you slow down to 'be in the listening')...
Third lesson of mine has been the whole BODY IMAGE thing... i have been morphed so many times, that i feel like i am trapped on the set of 'The Matrix' Lol! But i have found that all changes have come with lessons... At one stage i could not bare to look in the mirror even! BUT it is about letting go of control and learning who you REALLY are... inside X:-) i have have real trouble with steroids (which Prednisone is) BUT i must say they are FABULOUS for reducing inflammation which in turn helps your pain... It will put on a little weight with some people, but what i do now (And have just done) is i go on them for a few days, maybe a week at a time so that my own body does not get lazy... Because that is what the Cushings Syndrome i developed was ( i was on Dexamethasone for too long)... My system getting slack and saying to itself well if you are going to produce Cortisole (That is what the steroid does) then i will stop making it and then you puff up... But the one i was on was x5 stronger than Prednisone... Sometimes it will also cause some sleeplessness and you will puff up just a little (and restless leg syndrome can be a temporary effect too) while you are on it and you will feel hungrier... BUT again it will help you with inflammation and so help with your pain, so it is all about knowing what your meds do and working within that knowledge... When you find the right Doc you will know because they will learn to trust you and allow you to take some control over what doses you feel you can cope with... So i guess Lesson number Three would be about getting to know your body and learning not to be afraid to share that with your medical team... Don't be afraid, and fight it like i did Lol! It will only get you all knotted up and confused... RELAXATION is the key and having someone in your life to bounce off and go to Doc appt's with you is also important i have found... As when your body is going through a period like this sometimes your hearing shuts off! The BIGGY for me and probably the FOURTH lesson has been trying always to feel like i did 'before' (ie) 'Normal' again... i have learned that all things change and some things we just need to find Peace within about... The funny thing about THAT though is... As you begin to understand this, then your body starts to' Be' a better kind of 'normal'...
Talking about drugs/pharmaceuticals and being sensitive (like me!) You will find that this is sometimes a good thing as your body will let you know straight away if a thing is good or not for you... This is a really good thing... So i have learned to embrace this too...

***** remember i am not that Brave really... i cry, i shout and get mad at The Universe and my Family sometimes and that is okay i have learned too... But i have found that this sort of helplessness
is usually just that, i am feeling helpless, so arming yourself with information is good... Try out diff Doc's and get diff opinions... Try to weave the mainstream with the 'alternative'... i have discovered that there is not much difference between the two really... Just that the pharmaceutical companies have a little too much power in my opinion and try to categorize you... Don't allow yourself to be 'Labelled', lesson number FIVE for me... EVERYONE IS DIFFERENT and what works for one will often not work for another or it will vary with symptom variation... So i guess the thing to help with that is to DETOX... Don't go bull-at-a-gate, be gentle with yourself but looking at your diet is a BIGGY! Try to eat from fresh and not boxes... It is that simple really and a fresh juice each day is a good way to start, but i think you have already looked at this? i am just looking at ********* syndrome and it is a lot about your mucous membranes... So maybe start with... On an energetic level what does this mean to you? Look at each of the symtoms and consider each one (ie) Swelling (Being stuck in thinking. Clogged painful idea's) Mucus membrane (Layered deposits of old, confused thoughts clogging the channel of elimination. Wallowing in the gummed mire of the past)... This was from Louise Hay's "Heal Your Body'...
But most of all remember that ill health is really 'lessons in disguise' This has been a revelation to me... i have started to ~Live~ since i got so called 'ill'... i had forgotten that i was ~Here~ for ME too! So that Understanding has opened up my Life...It doesn't mean that i am a better or worse person, but i am now a person standing fully and squarely in HER/MY LIFE and in control more that i have ever been... But from 'the outside' i can just look like someone who spends a lot of time on the couch! But from the 'outside' and to 'others' things will look different... But it is not about what others think (Another biggie for me!) ...



Hope some of that helps, it has helped me to share it...
So ~Thankyou~ my lovely friend...
SEE ~EVERYTHING~ has a reason even an email!

X:-)

*Kisses*

xox