
A note to a friend that i haven't seen for a while...
- Hi Debbie, Great to hear from you X:-) i have finished a round of chemo that although was greatly successful (ie) reduced 5 inoperable tumors of the central liver to 2! i had so many side effects (Painful leg rashes, fevers and swelling) that the docs put me on steroids and then i reacted to them too!... And ended up 'blowing up' to 100 kilo's!!!(It became 'Secondary Cushings Syndrome') It was so bad that at one stage i was unable to walk X:-( i have now gone down 11 kilo's and am still going down... i also had Lymphodema (fluid) in my legs and arms/hands but that is now under control (Thank God!) As that was quite painful... i then went on Femara (a hormone pill/treatment aimed at reducing the tumor's ability to feed on estrogen-that is they aim to suppress the production of estrogen) But i didn't respond to that (ie) my liver has begun swelling again, like it did in the very beginning... Which is painful and uncomfortable... So now i am trying another hormone treatment called Tamoxifen... i have had so many CT (and bone) scans that i have started to forget how many and just last Friday had my first PET scan (Which is aimed at plotting any further cancer growth in my body) The best result of that would be that it is still contained within my liver X:-) As well as all this we have seen one specialist and have another yet to meet (next Friday) regarding different procedures aimed at 'blasting' the tumors... So my biggest hope right now is that we could contain the tumor size to make this easier... i rattle a bit at the moment with all the pills/supplements/pain killers and spend my days mainly resting (which is sooo boring that i want to smash the telly!!!) i have some good days and when i do i get straight out in the fresh air and try and walk my neighbors dog, who are in America at the moment... So that is it in a nut shell... Quite a journey no?!!! i have lots of support though with palliative care nurses visiting regularly and a Lymphodema nurse too... i have just recently gathered info to write up a will and funeral/etc instructions because this illness business is pretty tricky and things i have learned can change in a blink, BUT having said all that i am still hopeful (you know me the eternal optimist) but am trying to be practical too... So there it is, quite a ride no?!!! Hope you are coping well with your health luvvey, lots of *Love* and (((hugs))) Vicki xox
(Ps) i meant to tell you that on the way to the scan on Friday, i put out a prayer that my 'Spirit helpers' come and be with me... Primarily my Dad... Then a song came on the radio about... "Come lay with me and forget about the world" and when i looked up at these words, the car in front of us had the number plate: EF 111 ...My fathers initials! And in my worlde THAT means i was not alone in that tunnel... Thankyou Dad, For Always being there when i need you...
*Loving You Always*
Vicki xox
8 comments:
I am glad dad was with you, sweetheart.♥
I feel so much love for you. Thank you for the 'nutshell'.
Thanks for the update; brings all the pieces together.
Glad you're getting all kinds of wonderful support. Hope the test results and visits with doctors go well.
Dear Viki Nollyposh,
That was a heart-rending read. All those drugs and scans: unbearable to contemplate. Your resilience is strong and you face things with determination.
I was deeply moved by your car number plate and its meaning to you. I'm sure your Dad is there for you still.
Best wishes, Phil.
Vicki, You have been through a war and back,getting braver everyday.
I wish you could paint on your xrays and paint out all the cancer, wouldn't that be magic? I love the story of your dad, that indeed was magic!
Sending you armloads of hugs and love. xoxo
what a transitory anticipatory uncertain time. it is good that you put words to this journey and good that you share with people who care. i wish you everything right and good, vicki. together strong. it seems your father will steer this bus if and when you need him to.
♥
kj
Ah, sweetie. I am so glad you wrote this, putting it all together...your courage is beyond incredible!I'm so, so glad you have all the support...that helps so much. I hope your visits go well with your new doctors. I will send Reiki your way this evening during meditation...
There are no co-incidences...your dad is with you all the way.But how wonderful that you saw such great evidence! Sending you loads of hugs!
Thankyou ALL for such ~wonderful~ support *Kisses*
(Ps) Thankyou so much for the Reiki Marion (((Hugs))) and Annie what a FAB idea (about painting the x-rays!) i Love it! xox
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